Books and Articles

The Parent’s Guide to Children’s Congenital Heart Defects

What they are, how to treat them, how to cope with them.

By Gerri Freid Kramer and Shari Maurer

Three Rivers Press

 # ISBN: 0-609-80775-7

Raising Resilient Children

A Curriculum to Foster Strength, Hope, and Optimism in Children

By Sam Goldstein, Ph.D., & Robert Brooks, Ph.D.

Nobody’s Perfect

Living and Growing with Children Who Have Special Needs

 By Nancy B. Miller, PhD., M.S.W

The Parent to Parent Handbook

Connecting Families of Children with Special Needs

By Betsy Santelli, M.Ed., Florence Stewart Nobody’s Perfect


Canadian Pediatric Society –

Caring for Kids –

American Academy of Pediatrics –

American Academy of Child and Adolescent Psychiatry –

PEDS (Parents’ Evaluation of Developmental Status Examples and information regarding PEDS –

The Stollery Children’s Hospital Foundation (Edmonton) –

Pacific Children’s Heart Network (BC) –

The Children’s Heart Society (Edmonton)

Heart Beats – Family Support Network (Calgary) –

Children’s Health and Hospital Foundation (Sask)

Circle of Hearts – Support Group (Manitoba) –

Children’s Heart Association for Support and Education (Ontario)

Western Canadian Children’s Heart Network –

Family Support Institute of BC –

iheartChange (helping with the transition from PEDS to adult cardiology) –

The David Foster Foundation ( for families awaiting a life-saving organ transplant) –