Books and Articles
The Parent’s Guide to Children’s Congenital Heart Defects
What they are, how to treat them, how to cope with them.
By Gerri Freid Kramer and Shari Maurer
Three Rivers Press
# ISBN: 0-609-80775-7
Raising Resilient Children
A Curriculum to Foster Strength, Hope, and Optimism in Children
By Sam Goldstein, Ph.D., & Robert Brooks, Ph.D.
Living and Growing with Children Who Have Special Needs
By Nancy B. Miller, PhD., M.S.W
The Parent to Parent Handbook
Connecting Families of Children with Special Needs
By Betsy Santelli, M.Ed., Florence Stewart Nobody’s Perfect
Canadian Pediatric Society – http://www.cps.ca
Caring for Kids – http://www.caringforkids.cps.ca
American Academy of Pediatrics – http://www.aap.org
American Academy of Child and Adolescent Psychiatry – www.aacap.org
PEDS (Parents’ Evaluation of Developmental Status Examples and information regarding PEDS – http://www.pedstest.com
The Stollery Children’s Hospital Foundation (Edmonton) – http://www.stollerykids.com
Pacific Children’s Heart Network (BC) – http://www.childrensheartnetwork.org
The Children’s Heart Society (Edmonton) http://www.childrensheart.org
Heart Beats – Family Support Network (Calgary) – http://www.heartbeats.ca
Jim Pattison Children’s Hospital Foundation (Sask) http://www.pattisonchildrens.ca
Circle of Hearts – Support Group (Manitoba) – http://www.vchc.ca
Children’s Heart Association for Support and Education (Ontario) http://www.aboutkidshealth.ca
Western Canadian Children’s Heart Network – http://www.westernchildrensheartnetwork.ca
Family Support Institute of BC – http://www.familysupportbc.com
iheartChange (helping with the transition from PEDS to adult cardiology) – http://www.iheartchange.org
The David Foster Foundation ( for families awaiting a life-saving organ transplant) – www.davidfosterfoundation.com/information-for-families-and-social-workers
The Little Hearts Family Group supports families in the province emotionally with peer support and mentorship, helps to raise awareness, shares information and advocates for quality care of children with acquired or congenital heart conditions in our province. The Family Group does not deal with the financial needs of families or the Pediatric Cardiology department.
The Mending Hearts Fund of Saskatchewan picks up this piece of the puzzle by raising funds to support pediatric cardiology in the province.
For more information on the Mending Hearts Fund, please visit : https://www.facebook.com/MendingLittleHeartsSK/ or https://pattisonchildrens.ca/p/mending-little-hearts-fund/